The New Haven HIV Planning Council is a community planning group that oversees the prioritization and allocation of Ryan White HIV/AIDS Treatment Modernization Act (RWTMA) Part A funds. It is also called the Planning Council or Ryan White Council.
The Council has several major duties, including:
- Determining the needs of people living with HIV/AIDS, especially those not in care
- Setting priorities for the allocation of funds
- Developing a comprehensive plan for the organization and delivery of health services
- Assessing the efficiency of the grant administration and the effectiveness of services
- Defining Standards of Care for services provided to people living with HIV/AIDS.
The Council has a mandate to focus on people who are not in care (i.e. not receiving medical care) by assessing their needs and developing programs to bring them into care.
The Planning Council and its Committees use parliamentary procedure or Robert’s Rules of Order to conduct meetings. If you want to learn more about this procedure, access the link on the website called Decision Process.
The Council meets on the second Friday of every month from 12 noon to 2 p.m. with alternating locations in New Haven or Bridgeport. Additional meetings may be scheduled as needed. There are three (3) working committees of the Council—the Membership/Finance, Quality Improvement and Strategic Assessment & Planning committees. Each committee usually meets once a month. The Council can create ad hoc work groups to address short-term projects. Meeting dates and times are subject to change. For current meeting information, please see the Meeting Calendar
The Planning Council has a website, www.ryanwhitecare.org
which includes upcoming Council meeting times and agendas, locations, and minutes from full Council and committee meetings. It links to documents such as the Comprehensive Plan and other useful Council information.
The Professional Staff for the Planning Council can be reached by phone at 866-990-1203.
There are a maximum number of 45 seats on the Council. The federal legislation prescribes a number of areas of representation such as people living with HIV, community-based organizations, housing providers, and medical providers. It also specifies that organizations funded under other parts of the RWTMA, such as Parts B and C, and other federal programs be represented. The membership must reflect the demographics of the epidemic in the Transitional Grant Area (TGA). The members of the Council represent the broad range of people involved in the fight against HIV in New Haven and Fairfield counties.
The legislation mandates that at least 33% of Council members be unaffiliated consumers meaning they are not employed by or on the Board of Directors of any Part A funded organization in the TGA and that they reflect the demographics of the epidemic in our area. The Council has also decided that a majority of Council members should be people living with HIV/AIDS. In addition, at least one Council co-chair usually is a person living with HIV.
Membership application forms are available from Council staff and on the Council web site at Become a Member
. The Membership/Finance Committee reviews applications of potential applicants on an ongoing basis. The Membership/Finance Committee selects nominees and forwards names to the full Council. The Council votes on the applicants, and the names are forwarded to the Mayor for appointment. The Membership Committee strongly recommends that persons thinking about applying to the Council attend several Council or committee meetings first.
All members are appointed by the Chief Elected Official (CEO) of the largest jurisdiction in the TGA, in accordance with the legislation. The CEO for the New Haven/Fairfield Counties TGA is the Mayor of New Haven.
Council members are appointed for a three-year term. Members can re-apply for additional three-year terms, as long as they are members in good standing with the Council. Council members must meet the meeting attendance requirements to stay in good standing.
All Council meetings and committee meetings are open to the public. Public comment is taken at the beginning of each full Council meeting and during the meeting on each agenda item. Members of the public are encouraged to participate in the discussions at committee and work group meetings.
The Council represents New Haven and Fairfield Counties. Funding is allocated to five sub-regions based on the proportion of living AIDS cases in each county. Regional planning consortia convene on a monthly basis for each of the five (5) strategic planning regions in the TGA (Region 1 – New Haven, Region 2 – Waterbury/Meriden, Region 3 – Bridgeport, Region 4 – Stamford/Norwalk and Region 5 – Danbury).
The Ryan White HIV/AIDS Treatment Modernization Act was recently reauthorized in December of 2006. It redefined funded areas into two subsets—EMAs or Eligible Metropolitan Areas and TGAs or Transitional Grant Areas.. Prior to 2007, the legislation had been known as the Ryan White CARE Act. This federal legislation was originally passed in 1990 and reauthorized in 1995, 2000 and 2006. It authorized spending federal dollars for HIV health services through five different titles or parts. It was envisioned as a disaster relief bill to help cities and states overwhelmed by the costs of caring for people with HIV/AIDS. It helps support a comprehensive continuum of HIV health services for low-income people living with HIV. The current CARE Act will expire in FY 2010. Congress and Community Organizations are already working on the new version of the Act.
Part A (previously Title I) funds go directly to the urban areas hardest hit by HIV/AIDS. There are now 55 cities receiving Part A funds. The funds are for emergency HIV health services as described in the legislation. Part A requires a community planning process to prioritize and allocate the funds.
Part B (previously Title II) funds go to the states. Part B covers the AIDS Drug Assistance Program (ADAP, CADAP in Connecticut), which provides medications to low income people with HIV/AIDS.
The other Parts fund specific programs or special needs groups. The money goes directly to community-based organizations and medical facilities. Part C (previously Title III) funds early intervention services and community health clinics. Part D (previously Title IV) is for services for women, families, children, and youth. Part F covers dental services at dental schools, the AIDS Education and Training Centers, and Special Projects of National Significance.
The Health Resources and Services Administration (HRSA) administers the programs on the federal level. They are a part of the Department of Health and Human Services (HHS). The City of New Haven Ryan White Office (also known ast the Grantee) provides day-to-day administration on the local level.
Congress appropriates the funding for the Ryan White HIV Treatment Modernization Act each year. Half of the money for Part A is distributed through a formula developed by the Centers for Disease Control (CDC) to estimate the number of people living with HIV/AIDS. The other half is allocated through a competitive grant proposal process, often called the supplemental grant.
Ryan White funds pay for primary medical care, dental care, substance abuse treatment, mental health care, case management, and dental health services. In addition, 25% of total funds can be used for support services that help people get into medical care or stay in care such as housing assistance. It also pays for Planning Council staff and activities such as needs assessment, evaluation, comprehensive planning and grant administration. The funds are distributed to community-based organizations, public health programs, community health clinics, and hospitals.
Yes. The Federal government has a number of restrictions on funding. The money cannot be spent on capital improvements or construction. It cannot pay for permanent housing services. It must be used as the payor of last resort, meaning that if a service can be paid for somewhere else, such as billed to Medicaid, it cannot be paid for by Ryan White Part A. Money also cannot be given directly to consumers. The ability to use funds for counseling and testing or prevention services is limited.
Ryan White Part A services are for people living with HIV/AIDS who are low income and uninsured or underinsured. Programs or agencies may have additional eligibility criteria, such as disability. Services are prioritized for those with the most severe needs, such as those who are homeless or who have multiple diagnoses.
Ryan White Part A services are available at several locations in New Haven and Fairfield Counties. For a full inventory of services in the TGA, visit our Where To Go For Services
link on the website.
Over 5,000 people received services in the TGA in 2007. Compared to the demographics of all people living with HIV/AIDS, Ryan White Part A clients are disproportionately poor, people of color, and women. Of those for whom we have demographic information:
- The majority of clients are people of color (65%), including 36% African American, 29% Latino, 1% Asian/Pacific Islanders, and 34% White. Most are men (65%), with 35% women.
- Nearly 70% of clients are within 0 to 150% of the 2006 Federal Poverty Level. Further, 66.5% of those meeting the Federal Poverty Level Criteria have a Disabling AIDS or Disabling HIV+ status.
- One third are homeless or in unstable housing such as a shelter, a treatment program, or staying with friends.
- 27% have no health insurance and half are on public insurance.
- Nearly 42% report injection drug use (IDU) as their HIV exposure risk, 20% report MSM, 23% identified other sexual contact as their exposure risk and 15% did not report their exposure risk or are unknown.
- More clients access medical case management than any other service, followed by medical care.
- About 16% of current clients entered the system of care last year.
- Nearly 70% of clients meet at least two of the criteria for severe need.